By Aaior K. Comfort
Dr. Annette Akinsete, the National Director of the Sickle Cell Foundation of Nigeria, is dedicated to transforming the narrative around sickle cell disease and improving the lives of those affected. Since 1994, she has played a pivotal role in addressing this health crisis, which has a significant impact on Nigeria, home to one of the largest populations of sickle cell patients globally.
Childhood Aspirations and Background
Reflecting on her childhood, Dr. Akinsete recalls a desire to care for others. Initially considering a career in teaching or even the priesthood, her parents encouraged her to pursue medicine. Born in Ibadan and raised in various cities, she attributes much of her character to her strict upbringing by Reverend Sisters during her schooling at Saint Maria Goretti Girls Grammar School in Benin City. She fondly remembers her father, who inspired her with his kindness and support.
Myths and Facts About Sickle Cell Disease
Dr. Akinsete aims to dispel common misconceptions surrounding sickle cell disease, which many wrongly attribute to spiritual or supernatural causes. She emphasizes that sickle cell is a hereditary genetic disorder, not caused by witchcraft. The alarming statistic that approximately 500 out of every 1,000 children born with sickle cell disorder in Nigeria do not survive past five years underscores the importance of genetic counseling for couples at risk.
Passion for Sickle Cell Awareness
Dr. Akinsete’s commitment to sickle cell advocacy intensified during her tenure as Director for non-communicable diseases at the Federal Ministry of Health. Recognizing the lack of resources allocated to sickle cell compared to diseases like HIV/AIDS, she decided to dedicate her efforts to raising awareness and providing support for sickle cell patients.
Making a Difference in the Sickle Cell Community
With the establishment of the Sickle Cell Foundation Nigeria (SCFN), Dr. Akinsete has witnessed significant progress in public perception and awareness of sickle cell disease. Patients now live longer, with improved quality of life, thanks to advancements in treatment and care. She highlights the introduction of Hydroxyurea, a medication that helps reduce the severity of crises, and the establishment of a Stem Cell Transplantation Centre in partnership with reputable institutions, making life-saving treatments more accessible to Nigerians.
Advancements in Research and Diagnosis
Dr. Akinsete notes that ongoing research and technological advancements have greatly improved the diagnosis and management of sickle cell disease. The SCFN collaborates with various specialists to enhance patient care, utilizing state-of-the-art diagnostic tools like HPLC machines and point-of-care testing kits.
Personal Style and Interests
When it comes to fashion, Dr. Akinsete prefers a classy and simple approach, valuing timeless pieces over fleeting trends. She enjoys reading, taking walks, and watching movies, with an emphasis on maintaining a healthy lifestyle. Her beauty routine focuses on hydration, believing that true beauty comes from within.
Current Projects and Future Goals
Looking ahead, Dr. Akinsete is focused on launching the stem cell transplantation program. With nurses being trained abroad, the SCFN aims to provide local access to life-saving treatments for patients suffering from sickle cell disease. Through her unwavering dedication, Dr. Akinsete is not just changing the narrative of sickle cell in Nigeria but is also paving the way for a brighter future for those affected.